When it comes to confrontation, there seem to be two kinds
of people in the world. There are those
whose mouths burst wide open at the first opportunity, spitting their feelings
and/or opinions onto anyone who happens to be in the same room. Then there are those who “hold their tongue
to the death (to quote a friend of mine).”
My husband tends to be in the first category. The sweetest man in the world in most
respects, he seems to actually switch personalities when presented with an
argument. And once Mr. Hyde has surfaced,
it’s usually no longer about the issue at hand.
It’s about the arguing.
On a debate team for years during high school, Shane can
skillfully argue both sides of any issue.
I’ve seen him fill the minds of conservatives with libertarian ideas,
and fill the minds of libertarians with conservative ideas. I’ve also seen him convince meat eaters of the
health benefits of a vegetarian diet, and then turn right around and convince
vegetarians of the health benefits of eating meat, etc. It’s kind of fun to watch, actually, until
his mother, the only person in the whole wide world who can stop it short,
says, “Shane. Knock it off.”
He has his limits of course, because he does have a
conscience. He used to teach debate to
high school students when he was a teacher.
And some of his former debate students showed up to one of the district
board meetings that I was at one time (these meetings were being held to
determine whether or not the district would close down the alternative high
school that I was teaching in at the time).
I recognized these as Shane’s former students immediately,
not because I knew what any of them looked like, but because of the way that
they argued. The problem, however, was
that they were young and not very skilled yet (or that their then current
teacher was letting them present a distasteful argument), so I’m afraid that
they came across as little assholes rather than as articulate debate students.
They presented the argument, with intense feigned
enthusiasm, that since they were the future taxpayers in our town (the
implication being that my students were not), the school district should spend
its money on keeping them in football attire and other extra-curricular
equipment, rather than spend it on keeping my school, the place where the “drug
addicts and future convicts” were being educated, open.
These students presented this argument right in front of my
students, who had felt it important to show up and share their many success
stories with the board, to talk about our school’s contributions to these, and
to share the fact that our school had, in some cases, actually saved lives.
It was a tacky situation at best. In fact, the board was so mortified that they
had allowed such a coming together to take place at all, that they apologized
to everyone in the room afterward. But
it was small comfort by that point.
We ran into one of these former students of Shane’s at
Target a few weeks later, after the district had, indeed, decided to close down
my school (It’s a Walgreen's now. In
fact, I just bought stamps there this morning).
This boy actually came up to Shane and bragged, “Mr. Spears! We went to the district board meeting! And you should’ve heard our argument! Blah, blah, blah, blah.”
“Oh NO sweetie, DON’T,” did cross my mind, but I’m afraid
that my maternal instinct didn’t spontaneously inflate big enough, for some odd
reason, for me to complete a verbal jump in between this boy and my husband.
I don’t remember exactly what this boy said, because I
somehow managed to check out mentally for a moment. I don’t remember exactly how Shane responded
either, but I do know that he slipped into that familiar tone of voice. And I heard the words, “my former students” and “bunch of rich kids who’ve clearly never
known any real problems in their entire lives” and “so disappointed” and “I
must’ve failed you as your teacher.”
Shane talked to this boy for a long time. And the boy eventually left us, not only with
his tail between his legs, but also with a thorough understanding of his own
personal contribution to a possibly very detrimental, community wide mistake. Ouch.
It did hurt to watch. But I must
confess that I also enjoyed it immensely.
What? I’m not bitter. I was moving to Arizona shortly after that. And, little did I know at the time, I had two
Autistic children to look forward to adding to my already high maintenance
family, so I wouldn’t have been able to keep teaching anyway. But I am bitter for my former students. And I probably always will be.
“Enjoy your football equipment!” I didn’t call after
him. No, I really didn’t say it. I had the perfect opportunity and everything. Yet I held my tongue. And this brings me to my point.
While I tend to be in the same category as Shane under most
ordinary circumstances, I tend to dip more thoroughly into category number two
when it comes to actual confrontation. I
have hundreds of these examples – all of these little moments that I can
remember, in which I wish that I had said something that I didn’t say.
Why is this? Is it
that I want people to like what comes out of my mouth more than I want to
express my truth? No, that’s certainly
not it. Is it that I don’t want anyone
to dislike what comes out of my mouth?
That’s closer, but not quite it either.
Maybe it has more to do with my truth needing to be very important to me
before I’ll take the risk, and that intentionally hurting somebody’s feelings
is almost never an important thing for me to try to do. Yes, that’s probably the closest.
I’ll probably never be the one who’s going to tell you that
your toilet paper roll is on the holder backwards, or that the meal that you’ve
prepared isn’t absolutely fantastic, or that you look fat in that dress. If a friend of mine needs an on the spot
clothing critic, then I’m the exact wrong person to have around. If a friend of mine asks me for an honest
opinion, however, and is dead serious about it, and gives me a few minutes to
think about it (I usually have to switch mental gears big time to get into a critical
state of mind about clothing), then I can be honest. But the God’s honest truth is probably that
you look absolutely beautiful to me, no matter how fat you look in that dress.
Now, if you ask me if I think you’ve been a bitch to your
husband, or to a friend, or even to the lady behind the counter at the bank,
then brace yourself for a real, live, objective opinion. That’s important stuff. But also know that I’ll probably never, ever
tell you that opinion if you don’t ask me directly for it.
My tendency is to care more about your feelings than about
whether or not you’ve been a bitch, until you ask me directly if you’ve been a
bitch. Then, since I really cannot lie
to you and still live with myself, I’m forced to care more about the truth than
about your feelings.
This sort of makes sense when it comes to friends, doesn’t
it? But why am I like this with people
who clearly aren’t friends? Why would I
care about the feelings of these people at all?
The answer is that I don’t. I do, however, care about my own feelings. And I struggle to go to sleep at night if I’ve
treated somebody badly that day, no matter what they’ve done to me. This usually has very little to do to with
them, however, and more to do with my own awareness of how mean I can be. I really like to like who I am when I lay my
head on the pillow at night, but I don’t like myself when I’ve been mean to
somebody.
You see, I’m not like my husband, who can use his growing
anger to fuel the quality and speed of his own articulation, arguing somebody
to death in an appropriate manner. I’m
the exact opposite. My growing anger
eats my rational words (and thoughts) one by one, getting bigger and fatter
with each and every bite, until I’m left a speechless idiot who’s literally
holding back the beast. Then you get to
win the argument while I focus exclusively on not wrapping my hands around your
neck. And later, I regret not saying the
things that I should’ve said (or I regret the inappropriate way in which I said
them).
Since having children with Autism who scream like they’re
dying and slam their heads into things in public places, I’ve gotten lots and
lots of practice with appropriate confrontation in small situations. I can now look directly into the eyes of the
crabby old lady in the waiting room at the doctor’s office, who has no
experience with Autism, and no compassion for a mother who’s doing the very
best that she can, and who has just told me that I really need to make Cale
shut up, and say to her, “Listen honey, I have to listen to it twenty four
hours a day, seven days a week. I think
you can survive ten minutes of it.”
When it comes to real confrontation, however, (when someone
is genuinely wrong, and has not asked my opinion about it, yet I still have to
be the one to point it out to them – an incredibly rare and unusual situation)
I still tend to practice avoidance.
We have to take Cale back to his psychiatrist – the one who
prescribed the drugs that put him in the hospital, and then didn’t call, or
return our calls, afterward. I have some
compassion for this person regarding the effects of these medications on Cale,
as I think that psychiatrists (all doctors actually) are just guessing most of
the time about what might help (and/or not actually hurt) people. And I’m sure that this woman feels just
terrible for putting Cale in the hospital (or, at least, I would’ve thought so). But she didn’t call after he got home from
the hospital to see if he was okay (even though the hospital doctors let her
know what had happened). And she hasn’t
returned any of our calls (we left messages for the next three days in a row)
either.
Are we considering a lawsuit? No.
Unfortunately, there have only been two people (that we could find
anyway) who have won lawsuits regarding Serotonin Syndrome. One of them actually died from it, and the
other was able to prove that the psychiatrist had been negligent. When it comes to psychiatric medications, I’m
afraid that they get you to agree to a certain amount of risk before they’ll
treat your child.
We do plan on confronting her though, because this is one of
those times in which, even I have to admit, to not say something would leave me
awake at night more than saying something (even inappropriately) would. I’ve tried and tried to find a way to produce
some compassion for the psychiatrist for not calling. But there’s just no way around it (that I’ve
found anyway), because it’s just plain fucked up is what it is. Not only that, but it also seems like Cale’s
world (and sometimes Isabel’s too) is filled to the brim with people who want
us (and sometimes them too) to just go away (the insurance company, the state
DDD and Medicaid people, the schools).
Therefore, we never just go away.
Shane finally got a hold of somebody in the psychiatrist's office, on the
fourth day in a row of trying, who told him that we should just bring Cale to
his next scheduled appointment. So I
figured that Shane and I would go to the appointment together, that Shane would
appropriately and politely paint the psychiatrist a detailed portrait of her own inadequacy
as human being, and that we would leave and never go back.
Unfortunately, our next scheduled appointment was this week,
during which my primary verbal weapon, Shane, was in Phoenix for work. Therefore, I had to face the idea of going to
the appointment and confronting the psychiatrist alone.
I spoke with my spiritual adviser of sorts about it. And I told her that there was really no need
for me to go, because it’s not like we’re going to continue taking Cale to
this psychiatrist anyway. “The
appointment,” I told her, “is really just about confronting her on her apathy,
that’s all. And I won’t be able to be
polite about this the way that Shane would be able to.”
Do you know how you can generally tell when somebody probably
shouldn’t do something? It’s when they
want to do it just a little too badly.
And do you know how you can tell when somebody probably really should do
something? They don’t want to. It’s uncanny how often this little rule of
thumb turns out to be the actual case.
I don’t believe that there’s any right or wrong answer about
these things. Instead I think it has
more to do with motives. What is it that
is motivating me to say something or not?
Saying something simply because it feeds my ego (to make me “right” and
make you “wrong”) is the wrong motive for me to say something. But if I don’t say something only because it
protects me from what might happen if I do, then that’s just the flip side of
the same coin. It’s still about
protecting ego.
A good rule of thumb, I’ve found, when trying to make a
decision like this, is to ask the question, “If I was to look back on this
situation from my death bed, would I wish that I had said it?” The cool thing about asking myself this
question on a regular basis is that I find that I tell people that I love them
a lot more often than I ordinarily would’ve too.
“I think you should go,” my spiritual adviser of sorts said
to me, “I think you need the closure.”
“But I won’t be able to be appropriate about it,” I said.
“Just pray before you go.
You can be honest with her without being mean,” she replied, “Just say
that you’re very concerned about what happened, and that you’re disappointed
that she didn’t call afterward or return your calls all week. Then tell her that you’re in a lot of fear
now, because not only is it going to take you three months to get into a new
psychiatrist, but that you feel all alone in trying to figure out what to do
for Cale right now.”
“But I won’t be able to be appropriate about it,” I
repeated.
“Yes, you will,” she replied.
By the day before the appointment, I bet I had played out
fifteen different scenarios in my mind, each using some variation of what my spiritual
adviser of sorts had suggested to say, and each still ending with my hands
around the psychiatrist’s neck. I really
didn’t want to go. But I had known for a
few days that I needed to be willing to go.
I just knew that this was a test.
And I knew that if I failed it, I’d somehow find myself taking it
again. So I had prayed a lot. And I had become willing to go.
It seems that the moment that I actually became willing to
go, every roadblock that could’ve possibly popped up to keep me from going to
this appointment, started popping up.
Shane, like I said, was out of town for work. And my mother-in-law’s sister-in-law passed
away, so my-mother-in law (my primary source of help with the kids) was out of
town. And my cell phone had died. And I mean dead. It was a touch screen, and it had stopped
responding to touch of any kind (believe me I tried them all). And I don’t have a land line, so I had no way
to call anyone, receive calls, check my messages, or text.
Yeah, yeah, I know.
But I ask you this – have you ever actually seen a child with
recognizable Autism in a Verizon Wireless store with one lone adult? No you have not. And there’s a reason for this. You’d have to pay me $100,000 to take Cale
into a Verizon Wireless store, because after he got done destroying everything,
that’s probably about what our tab would be.
It’s kind of amazing how restricted Autism parents can be. Something like a dead cell phone can takes
weeks to deal with. And regular people
take for granted, I think, ordinary things like being able to run errands.
I had asked some friends of mine for babysitting help that
week so that I could go and get a new phone, but most of my friends work during
the day, and my spiritual adviser of sorts had gone out of town, so I hadn’t
found anyone who could help me.
“Oh well,” I figured the night before the appointment, “I
don’t need to call the psychiatrist. I
just need to show up at the damned appointment.”
My plan was to drop Alden and Isabel off at bible school
that morning at 9am, and have my grandma pick them up when it was over with at
noon and take them to her house until after the psych. appointment (my grandma
is 82 years old and can handle Alden and Isabel, but not Cale). After I dropped Alden and Isabel off at bible
school at 9am, then I’d go and buy a new phone, get Cale off the school bus at
11:15am (it was his last day of summer school, now I’ll have him home twenty
four seven until September or whenever the hell school starts up again), and
get him to the appointment by 11:40am.
Then I’d pick Alden and Isabel up from my grandma’s after the
appointment, and the whole damn thing would be over with. Then it would be ice cream from the
Dairy Queen drive through to celebrate a job well done.
It was a good plan.
In fact, I had laid my head on the pillow that night rather proud of
myself for having gotten it together, because it had taken some real finagling
to put it together without a phone. So I
knew that I must be willing. I was going
to be confronting this psychiatrist alone come hell or high water.
“Mom,” Alden woke me up, “I don’t feel very good.”
“You have got to be kidding me,” no I didn’t actually say
that to him.
He threw up all night long.
And, by the next morning, he was having diarrhea every few minutes.
I already knew that nobody could babysit, not that I had any
way to call anyone and double check, and not that anyone should babysit a
puking child anyway. I also had no way
to call my grandma to ask if she could come and watch Alden and Isabel so that
I could still take Cale to the appointment.
And I had no way of leaving the house (to go to my grandmother’s house
and ask her if she could watch Alden and Isabel, or even let her know not to
pick them up from bible school at noon) because Alden couldn’t be away from a
toilet for more than a few minutes at a time.
I thought, for a moment, about taking all three of my kids
to the appointment. “Sorry,” I would
say, “but I literally have no help today.
And, since our lives really are this damned complicated, I would greatly
appreciate you not putting Cale into the hospital with your drugs anymore. And if you could at least pretend, just a
little tiny bit, to give a shit about Cale, I would greatly appreciate that as
well (oh, maybe I really wasn’t ready).”
It would’ve been fun. But, again, Alden couldn’t be away from a
toilet for more than a few minutes at time.
I didn’t even have a way to call the psychiatrist to let her know that
we weren’t coming. All I could do was
email Shane and ask him to call and reschedule the appointment, and ask him to
call my grandma and let her know not to pick up the kids at noon, and hope like
hell that he got the message before the appointment and before noon. It was absolutely ridiculous. He did get the message in time, by the way.
I guess that it just wasn’t meant to be this week, but I do
fully intend to keep my “big girl panties” securely fastened for our next
scheduled appointment. And I think that
I’ll even have a little talk with Shane and let him know what I’ve been through
with all of this. That way I can say to
him, “Let me do the talking, will you?”
But, to be perfectly honest with you, it will probably still all end with
me leaning back in my chair and saying, “Oh, just sick her sweetie.”
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