It was one of those clear, perfect evenings that
follows a very hot day. And even though
there was no creek nearby, there were tall, pine tree covered mountains
completely surrounding our little RV park.
The forests outside of our immediate clearing were thick and woody too,
the kind that you can barely see through, with bright green, moss covered
trees. It reminded me of the Oregon
coast.
My kids were sitting next to me in lawn chairs,
right in the midst of all this gorgeousness, under the most breath-taking
colors of a mid-summer sunset, playing video games.
Sigh.
And Cale was behind the trailer obsessing over the water from the hose, with the neighbors right there watching him from their color coordinated lawn chairs, wondering what was wrong with him.
Sigh.
And Cale was behind the trailer obsessing over the water from the hose, with the neighbors right there watching him from their color coordinated lawn chairs, wondering what was wrong with him.
“He’s Autistic,” Shane explained to them at one
point.
“Yes,” the lady smiled at Shane, “I gathered that.”
We’d been to town already and had spent $30 on five,
tiny soft-serve huckleberry shakes. And
unable to imagine what an actual meal would cost, we’d decided to do something
my way. We’d cooked hot
dogs over a fire for dinner, with s'mores for desert.
No one else cooked over an outside fire there. In fact, we could actually smell the grilling
of steaks and peppers and potatoes, that was happening inside of the motor homes.
It was just odd. The owners of
the camp ground had to bring us a portable fire pit to use, in fact, because
the “camp” site itself didn’t actually have one.
Sigh.
I don’t mind being a spectacle. I’ve been one of those for most of my life,
so it really doesn’t bother me all that much.
What I can’t stand, however, is missing things. Missing life.
I’m the one that’s always there. Or, I used to be anyway. I’m the one that’s always at the party, or
the wedding, or the event, or the birthday, or at any other kind of celebration
for that matter. So I was hit with quite
the little wave of self-pity when I didn’t get to be there as Alden and Isabel
watched their first Fourth of July fireworks display.
Shane and my mom took Alden and Isabel into town to
watch the fireworks, and I stayed behind with Cale. It was for the best really. Things were already so unfamiliar for Cale
that my mom putting him to bed probably would’ve sent him over the edge. I snuggled him up at his bed time, sang him
his song, and closed the curtains to his bed.
Then I went outside the trailer, sat down, and stared at what was left
of the fire.
It was getting dark outside. I could hear the booms from the fireworks
going off in town, and I felt alone.
“This isn’t how it was supposed to be,” my brain
started in on me almost immediately, “I was supposed to be able to be with my
kids for these kinds of things. Nothing,
in fact, is how it was supposed to be.
We were supposed to go camping for crying out loud. CAMPING.
This isn’t camping. Where are the
nearby pine trees? Where’s the rush of a
passing by creek? The very most basic
BASICS are missing here. I mean, what
kind of a camp site doesn’t even have a fire pit?”
I sat there for quite awhile, staring at the dark
mountains and listening to the fireworks that I couldn’t see. And when I couldn’t take it anymore, I went
inside to make a cup of tea in the microwave that wasn’t supposed to be
there. As I was doing so, I saw my son’s
wide eyes peeking out from between the curtains in front of his bed. The increasingly more frequent sounds of the
distant fireworks were starting to scare him.
“It’s okay baby, Mama’s right here,” I said as I got
into bed with him. He eased right up and
smiled when I started singing his song again.
Then he put both of his little arms around me and squeezed, and I didn’t
feel alone anymore.
A friend of mine once told me that God doesn’t make
deals. “You get what you get and you
don’t throw a fit,” to put it into pre-school language, and you can feel
however you’re going to feel about it until you’re done feeling that way about
it. Then you change how you feel about
it if you care to.
I was so angry about my son’s Autism for so
long. And I’d like to clarify here that
it’s had nothing to do with my son as a person.
It’s had to do with the profound, inflexible, unfix-able, unchangeable disability
that comes along with him, and the fact that it often keeps us from living the
lives we thought we were going to live. I
still, on occasion, have moments of anger about this, especially when missing
first time events of my other children’s lives.
I adore my son. I don’t talk about his good qualities nearly
enough – like the fact that celebrations mean nothing to him at all. He doesn’t notice when it’s someone’s
birthday, or when it’s Halloween or Christmas or Mother’s day or Father’s Day. To him, every day is a celebration.
And he doesn’t acknowledge or care about gifts. He doesn’t acknowledge or care about stuff of
any kind for that matter. He doesn’t
compare peeling pop ups to shiny new motor homes, or consider what might be the
right or wrong way to camp. To him, all
of it is special and none of it is special.
And it doesn’t occur to him in the slightest to worry about what others
might think of him. He’s so cool that
way.
The Autism isn’t something that I can change or
avoid. And I had to be angry about it
for as long as I had to be angry about it.
Eventually, however, I got sick of feeling angry. That’s when feeling peace instead of anger
became paramount to all else.
Only then could I let go of the “how it was supposed
to be’s.” Only then could I stop having
to be “right” about things - the idea that a mother should be there the first
time her children see Fourth of July fireworks, for example. How do I know what a mother should or shouldn’t
be there for? I mean, it’s not like
Alden and Isabel really notice. They’ve
never known things to be any other way, so they don’t even know that something’s
wrong. I’m the only one who notices
that. And how long do I want to do that
for?
Someone that loves my children is always there for
them, and always has been. It just hasn’t
always been their mom. It’s been the
exact right someone that was supposed to be there for them instead. I’m not the end all be all for my kids.
It’s only when I let go of my old ideas - stop
thinking I’m right about how things are supposed to be - that I become open to
new experiences (like RV-ing), and open to the idea that the Autism itself is
an incredibly special gift. It’s a pain
in the ass, don’t get me wrong. But it’s
also a gift, because Cale’s Autism has taught me more about the things that
really matter than anything else ever has.
It’s such a privilege to have him in my life.
As I sat there holding Cale, I remembered that my
friend also said that the plan for me was set in place even before God made the
rivers. That’s a long time, don’t you
think? And it got me thinking, maybe we
get to live a bunch of lifetimes.
I have to believe that there’s enough time for
everyone and everything. I mean, I’ve
been camping, by my own definition of it, a lot already, thanks to my gutsy,
glorious parents who always insisted on living life to the fullest with
whatever they had. Maybe I get to just
enjoy RV-ing now. I must confess that
it’s quite nice to have a microwave in the middle of the mountains.
And maybe I’ll get to see Alden and Isabel watch Fourth
of July fireworks for the first time in another life. Maybe this life just happens to be the one in
which I get to pay attention to Cale.
I sat there awhile and thought about all the people
I’d like to spend a lifetime paying attention to. There are a few of them. There are some that I would even trap and
snuggle for a lifetime if I could get away with it. My husband, for example. I’d really like to just trap him somewhere
and do nothing but hold him in my arms for an entire lifetime.
Maybe Cale was one of these people in a past life. Or maybe I was one of the people he wanted to
trap and snuggle. I mean, I was definitely
feeling trapped and snuggled. Maybe it’s
simply our turn now, in this lifetime, to hold each other. It’s all so much bigger than we can see.
As I pondered these probably silly ideas, Cale fell
asleep in my arms. I looked down at his
sweet little sleeping face and I suddenly felt, with my whole being, that
everything was exactly how it was supposed to be. I was trapped, most definitely. But I was also free in a way that I had never
been before.
Alden and Isabel and Shane and my mom told me all
about the notorious fireworks display when they got back, and, as they did so,
I couldn’t feel even one last drop of self-pity.
“It was SO GREAT Mom!” Alden and Isabel shouted.
“It really WAS soooo much fun!” Shane explained,
“I’ve never seen anything like it before!”
My mom laughed out loud and asked Shane, “What would
you say that it resembled?”
“Oh, I don’t know,” Shane replied, “A Civil War
battle field maybe. It was absolutely
nuts!”
“People were setting off giant rockets all around
us,” my mom explained with a big smile on her face, “which was fine when they
shot straight up like they were supposed to.
It was when they fell over and THEN launched that it set people running! I thought about coming up here to watch Cale
so that you could run down and see it for yourself, but then I realized that
you would’ve made Shane and the kids leave.”
“Yeah,” Shane smiled, “It’s SUCH a good thing Jess
wasn’t there. She wouldn’t have let us
stay for more than about two minutes.”
They were right too.
I wouldn’t have. It really did go
exactly the way it was supposed to. It
was the perfect end to a perfect day, in spite of me.
The next morning, after Cale had obsessed over the
water in the hose behind the trailer until he was literally bursting at the seams
for a bigger pool, with the neighbors right there watching him from their color
coordinated lawn chairs, he started screaming.
And after he’d screamed uncontrollably for about an hour or so, attracting
the attention of every single person in the entire campground, yet it was still
going to be another hour before the swimming pool opened, we decided to pack it
up and go home.
Alden and Isabel were sorely disappointed. “But the little girl in that trailer gets to
stay here for four days, Mom!” they explained.
I put Cale in his car seat in the Land Cruiser with
the air conditioning running and shut the door.
That way we didn’t have to listen to the screaming while we packed
up. We managed to get the trailer squished
back down again fairly quickly. Then my
mom and I, at the beckoning of Shane, tried to push the thing towards the Land
Cruiser so that Shane could hook it back up.
It wouldn’t budge.
And I’m no wimp. I can hold up my
end of any couch, dresser, wardrobe, anything, just as well as any guy. Having to deal continuously with an almost seven
year old, never-ending toddler has provided me with an almost unnatural amount
of upper-body strength.
Turns out there were boards in front of and behind
the wheels to keep the trailer from rolling away. Super Man couldn’t have moved the thing. No one blamed anyone for forgetting that the
boards were there though, because no one could be wrong. It’s amazing how much relationship erosion
that one, little tool can prevent.
Shane got into the truck and pulled forward, then
got out to see how close he was, then got in and backed up, then got out to see
how close he was, then got in and pulled forward, then got out to see how close
he was – each time shutting the door as he got out so that we didn’t have to
hear Cale’s screaming. It went, “aaAAAAUUUUGGG!!...
silence… aaaAAAAHAAAUUUUGGG!!!... silence… AAAAUUUUGGG!!... silence… etc.”
If we weren’t a spectacle before then, we certainly
were by that point.
While my mom and I were pushing the trailer the last
inch or two to get it into place, I looked up and saw our neighbors again. They were less than fifteen feet away, as
usual, on their color coordinated lawn chairs.
They were laid back with their heads resting in their hands behind their
necks, smiling as they watched us.
“We’re the family you watch when you want to feel
grateful for what you have,” I whispered to my mom, “They’re probably saying to
each other, ‘Aren’t you glad we’re not them?
We’re sooo blessed, aren’t we?’”
We were all giggling with mixed emotions at own
ridiculousness by the time we got on the road.
And once Cale had stopped screaming and things had calmed down a bit, we
began to decompress. “Wow,” Shane said
to me, “We survived.”
“We camped and the kids saw fireworks,” I replied, “Mission
accomplished.”
We sat in silence for a few minutes.
“Are we ever gonna do it again?” I asked Shane.
“Not without a proper set up, we’re not,” he said
immediately, “We need a motor home. I’ve
decided. There will be nothing to pop
out or attach to a truck. It needs to
have space and air conditioning and a bathroom with a bath tub in it for Cale.”
I looked at him and blinked my eyes, “They put bath
tubs in motor homes?”
“Oh, yeah,” he said, “and it’s the only way to go
with our kids.”
“You know,” I
said, smiling as the surrender sunk all the way to the bottoms of my toes, “I’m
with you on that. I think I like your
idea of camping.”
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